Information For Healthcare Providers
Myalgic encephalomyelitis/chronic fatigue syndrome is a complex, chronic, debilitating disease with systemic effects. ME/CFS is characterized by reduced ability to perform pre-illness activities that lasts for more than 6 months and is accompanied by profound fatigue, which is not improved by rest. A hallmark of ME/CFS is that symptoms can worsen after physical, mental, or emotional effort, a manifestation known as post-exertional malaise . Patients with ME/CFS also have unrefreshing sleep. Other common manifestations are orthostatic intolerance, cognitive impairment, and pain. As can be observed in people with other long-term chronic illnesses, secondary psychological symptoms such as depression and anxiety may also be present in some patients with ME/CFS.
ME/CFS educational resources to help healthcare providers with patient care, including assessment, managing ME/CFS symptoms and providing other supportive strategies to improve patients quality of life.
CDC has partnered with Medscape to offer five continuing medical education activities for healthcare providers. All courses can be accessed by either a desktop computer or a mobile device.
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Keep Time With Your Body Clock
Some people get a burst of energy first thing in the morning. Theyâre often called morning larks. Night owls are people who are at their best at the end of the day.
These individual differences in daily energy patterns are determined by brain structure and genetics, so they can be tough to change. Instead, become aware of your own circadian rhythms. Then schedule demanding activities when your energy levels are typically at their peak.
Will I Still Be Able To Work With Me/cfs
Research shows that about half of people with ME/CFS work part-time or full-time jobs. For some people with ME/CFS, the ability to work is possible thanks to a supportive employer and certain workplace accommodations, including a flexible schedule, a quiet comfortable place to rest, and memory aids.
But, if you can’t work because of ME/CFS, you may be eligible for Social Security benefits. Learn more about applying for disability through the Social Security Administration.
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Support Your Immune System
Chronic infections may be an underlying cause of chronic fatigue, but they are widely undiagnosed.
What to do: In addition to getting tested for underlying infections, consider blends of Siberian ginseng, samento, sarsaparilla, guaiacum, astragalus, resveratrol, and cat’s claw for their immune-strengthening properties.
Pay Attention To Sugar
Sugar can also increase your energy temporarily, but the crash afterward can compound your tiredness. Instead of reaching for foods with refined sugar, Groppo suggests eating naturally sweet foods with a bit of protein to help even out your blood sugar and energy levels. Berries with plain, unsweetened yogurt is a great option.
Fill up on nonstarchy veggies. Try to include vegetables of all colors throughout the day to get their unique nutrients and benefits. Red vegetables, for instance, are full of phytonutrients that act as antioxidants and help reduce inflammation. Yellow veggies contain important vitamins and minerals like vitamins A, C, and B6.
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Alternative Or Complementary Medicine
Since there is no standard treatment for CFS/ME, people often consider alternatives to traditional medicine or use non-traditional treatments to complement their other medications. Commonly used alternative and complementary treatments include:
- Mind-body treatments, like qigong, tai chi, and meditation
- Trigger point therapy, called myofascial release
- Chiropractic treatments
Complementary therapies have received mixed results when scientifically studied. Before beginning an alternative or complementary treatment, talk with your doctor to ensure that you arent trying something potentially dangerous.
Eliminate Sugar And Processed Or Packaged Foods
Eat a candy bar and your energy will usually plummet soon after. Sugar and other refined carbohydrates give you a little shot of energy, but at a huge expense: Those blood sugar spikes nosedive quickly, leaving you feeling drained. If eliminating sugar completely is too challenging, gradually trade it for lower-sugar foods, like berries, to transition off sugar. Eat nuts instead of chips or cookies.
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What May Cause Chronic Fatigue Syndrome
Why chronic fatigue syndrome occurs is unclear and complex. Researchers conclude that infections, like pneumonia and bronchitis, and other immune deficiencies can be related to chronic fatigue syndrome. Depression, pain, and sleep disturbances frequently occur with chronic fatigue syndrome.
If you suspect chronic fatigue syndrome, you should find a healthcare practitioner who can take a holistic approach to your health and uncover underlying health issues and lifestyle factors that may contribute to your fatigue.
Unfortunately, patients sometimes feel frustrated that they havent been able to get answers from their doctors or by asking . They might see symptoms like chronic fatigue as in their head or they lack motivation or willpower.
Treatments For Chronic Fatigue Syndrome
Since researchers do not yet fully understand the cause of chronic fatigue syndrome/myalgic encephalomyelitis and people with the illness can experience a wide variety of symptoms, multiple treatments exist. Treatments are aimed at managing and reducing the severity of CFS/ME symptoms, rather than at curing the illness.
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Pacing Activity For People With Me/cfs
Pacing, or keeping within your available energy, is a self-management strategy to help people with ME/CFS make sure that they dont overdo activity or exercise. It reduces the likelihood of triggering PEM and can help reduce symptoms. Pacing is not a cure for ME/CFS and does not treat the underlying, physical cause of the disease.
The goal of pacing is for activity to be sustainable, so that the person can have some stability in their symptoms and what they can do each day. Pacing should be used in conjunction with rest.
The most challenging aspect of pacing is that PEM is very often delayed by as much as 24-48 hours, which can make it difficult to recognise when youve done too much. Using tools like an activity diary or heart rate monitor help you learn about your body and how much activity you can safely tolerate.
Suggestions on how to pace yourself include:
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Sleep Rest And Relaxation
You may have sleep problems that make your ME/CFS symptoms worse. For example, you may:
- have problems getting to sleep
- have unrefreshing or restless sleep
- need an excessive amount of sleep
- sleep during the day and be awake at night
You should be given advice about how to establish a normal sleeping pattern. Having too much sleep does not usually improve the symptoms of ME/CFS, and sleeping during the day can stop you sleeping at night.
You should change your sleep pattern gradually, and your doctor should review how it’s going regularly. If your sleep does not improve after making changes, you may have an underlying sleep problem that will need to be addressed.
It’s likely you’ll need to rest during the day, and your doctor should advise you about the best way to do this. For example, they may suggest limiting each rest period to 30 minutes and teach you relaxation techniques, such as breathing exercises.
If you have severe ME/CFS and need to spend much of your time in bed, it can cause problems, including pressure sores and blood clots. These problems, and how to avoid them, should be explained to you and your carers.
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Can Complementary Or Alternative Medicine Help Manage The Symptoms Of Me/cfs
Some people say that complementary or alternative medicine has helped their ME/CFS symptoms. Keep in mind that many alternative treatments, dietary supplements, and herbal remedies claim to cure ME/CFS, but some might do more harm than good. Talk to your doctor before trying alternative therapies to be sure they’re safe.
Increase Potassium And Magnesium Intake
Research shows that both potassium and magnesium can help improve the symptoms associated with chronic fatigue syndrome.
Magnesium
In a study published in the UK medical journal The Lancet, chronic fatigue syndrome patients were found to have low magnesium levels that accounted for a low red blood cell count.
In this study, patients that were treated with magnesium supplements self-reported improved energy levels, a more balanced emotional state and less pain. At the end of the six-week study, all patients that were given magnesium had their red cell magnesium levels return to normal.
If you have chronic fatigue syndrome, consider adding these magnesiumrich foods to add to your diet: spinach, chard, pumpkin seeds, yogurt and kefir, almonds, black beans, avocados, figs, dark chocolate and bananas.
These delicious foods can help you overcome chronic fatigue, one of the symptoms of a magnesium deficiency, and support healthy nerve function, healthy blood sugar levels, blood pressure regulation, and much more. Its estimated that nearly 80 percent of Americans are currently deficient in this essential mineral.
Potassium
Potassium is responsible for proper electrolyte balance in the body. Potassium-rich foods include avocados, spinach, sweet potatoes, coconut water, kefir and yogurt, white beans, bananas, acorn squash, dried apricots and mushrooms.
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Discussing Treatment Options With A Doctor
The medical community differs over the exact treatment courses for those living with CFS. Youll need to work closely with a healthcare team to determine which symptoms are impacting your quality of life the most.
You may start with treatment of these issues and progress to others in time. Many treatment options are available, ranging from over-the-counter drugs to alternative therapies.
The most effective treatment for CFS is the one thats catered to you and your specific symptoms. A doctor may suggest a variety of treatments depending on what youre experiencing and what your treatment goals are.
Tips For Maintaining A Regular Yoga Practice While Dealing With Chronic Fatigue Syndrome
Chronic fatigue syndrome hinders yoga practice. You can manage your practice in numerous ways. First, listen to your body and dont overwork. If youre tired, choose a restorative or milder class. Home practice might provide you with more control over the pace and intensity of your practice than a studio. Mindful breathing and body relaxation are also important. Before your practice, take a few deep breaths to feel more centered and relaxed. Modify poses as needed and take breaks. There is no perfect way to do yoga find what works for you.
Chronic fatigue syndrome is a debilitating condition that can make everyday activities very difficult. However, yoga has been shown to be an effective treatment for chronic fatigue syndrome, providing many benefits for people who suffer from the disorder. If you are dealing with chronic fatigue syndrome, we encourage you to give yoga a try. It may not cure your condition, but it could help you feel better and improve your quality of life. And if youre new to yoga, dont worry we have plenty of tips to help you get started. Thanks for following along!
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Mental Health Support And Me/cfs
ME/CFS is not a psychological disorder. However, living with a chronic illness is challenging, especially one that involves missing out on normal life activities, and this may lead to mental health problems like anxiety or depression.
Speaking with a qualified mental health professional who understands the challenges of living with ME/CFS can be very helpful. They can help with things such as coping with changes to schooling, employment or social activities, and symptoms such as difficulty with sleep or pain. With the availability of Medicare rebates for telehealth, many mental health practitioners now offer remote consultations which makes healthcare more accessible for those who are housebound or bedbound with ME/CFS.
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Preparing For An Appointment
If you have signs and symptoms of chronic fatigue syndrome, you’re likely to start by seeing your family doctor or a general practitioner. It can be difficult to absorb all of the information provided during an appointment, so you might want to arrange for a friend or family member to accompany you. Having someone else hear the information can help you later in case there’s something you missed or forgot.
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Is There Any Treatment
There is currently no cure for CFS. The therapies for this disorder are directed at symptom relief. It is important to maintain good health by eating a balanced diet and getting adequate rest, exercising regularly without causing more fatigue, and pacing oneself because too much stress can aggravate the symptoms of CFS. Working with a physician to develop a program that provides the greatest benefits also will help in reducing frustration with the illness.
Non-pharmacological therapies include acupuncture, aquatic therapy, chiropractic, cranial-sacral, light exercise, massage, self-hypnosis, stretching, tai chi, therapeutic touch and yoga. Certain psychotherapies such as cognitive behavioral therapy also have shown promise for facilitating patient coping and for alleviating some of the distress associated with CFS.
In pharmacological therapy there is a variety of medications that can relieve specific symptoms. It is important to begin with low doses and to escalate the dosage gradually as necessary.
Some CFS patients may also find it therapeutic to meet with other people who have this illness, and this can be accomplished by joining a local CFS support group. Support groups are not appropriate for everyone, and may actually add to their stress rather than relieving it.
What Is The Prognosis
The clinical course of CFS varies considerably among persons who have the disorder. The actual percentage of patients who recover is unknown, and even the definition of what should be considered recovery is subject to debate. Some patients recover to the point where they can resume work and other activities, but continue to experience various or periodic CFS symptoms. Some patients recover completely with time, and some grow progressively worse. CFS follows a cyclical course, alternating between periods of illness and relative well being.
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Yoga Poses That Are Especially Beneficial For People With Chronic Fatigue Syndrome
Chronic fatigue syndrome makes simple tasks difficult. The condition causes extreme fatigue that isnt relieved by rest and can affect the quality of life. Yoga may improve CFS symptoms, according to some evidence. Recent research found that CFS patients who took yoga classes experienced less fatigue and better sleep. They felt happier and less stressed. Yoga may be a gentle and effective way to relieve CFS symptoms, but more research is needed.
Tips For Exercising Safely With Me/cfs
If you feel you can tolerate some exercise, be guided by your doctor or specialist, but general suggestions include:
- Experiment to find the type of exercise that works best for you. Choose from a range of gentle activities such as stretching, yoga, tai chi, walking and light weight training. Often, people find exercises lying down use less energy.
- Keep an activity diary so you have a long-term picture of your performance levels and factors that might impact on your symptoms. Some people with ME/CFS find they feel good straight after exercise, but then crash later on, so make sure you monitor how you feel, hours to days after exercise.
- Stop the physical activity well before you feel any symptom flare. Pacing yourself is very important.
- Remember that the amount of exercise you can do will change from one day to the next.
- Listen to your body if you dont feel up to exercising on a particular day, dont.
- Find out as much as you can about your ME/CFS. Make sure you consult with health professionals who fully understand ME/CFS as a biomedical disease
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Treatment Of Chronic Fatigue Syndrome
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Cognitive-behavioral therapy
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Graded exercise
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Drugs for depression, sleep, or pain if indicated
In most cases, symptoms of chronic fatigue syndrome lessen over time. However, it often takes years for symptoms to subside, and not all symptoms disappear. People may recover more fully if they focus more on what function they can recover than on how much function they have lost.
Specific symptoms such as pain, depression, and poor sleep are treated. Cognitive behavioral therapy and gradual graded exercise, which have helped some people, may be worth trying.
Home Remedies And Lifestyle Changes
Making some lifestyle changes may help reduce your symptoms.
Limiting or eliminating your caffeine intake can help you sleep better and ease your insomnia. You should limit or avoid nicotine and alcohol too.
Try to avoid napping during the day if its hurting your ability to sleep at night.
Create a sleep routine. Go to bed at the same time every night and aim to wake up around the same time every day.
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Yoga For Chronic Fatigue Treatment
Chronic fatigue syndrome is a condition characterized by extreme fatigue that is not relieved by rest. Symptoms can also include muscle pain, joint pain, headaches, and memory problems. While the cause of chronic fatigue syndrome is unknown, it is believed to be the result of a combination of factors, including viral infections, hormonal imbalances, and psychological stress.
There is no cure for chronic fatigue syndrome, but there are treatments that can help manage the symptoms. One such treatment is yoga. Yoga has been shown to improve chronic fatigue syndrome symptoms by reducing stress and improving sleep quality. In addition, yoga can help to increase energy levels and improve muscle strength. For people with chronic fatigue syndrome, yoga can be an effective way to manage the condition and improve their quality of life.
How Is Cfs Diagnosed
CFS is a very challenging condition to diagnose.
According to the Institute of Medicine, as of 2015, CFS occurs in about 836,000 to 2.5 million Americans. Its estimated, however, that 84 to 91 percent have yet to receive a diagnosis.
There are no medical tests to screen for CFS. Its symptoms are similar to many other conditions. Many people with CFS dont look sick, so doctors may not recognize that they indeed have a health condition.
In order to receive a CFS diagnosis, your doctor will rule out other potential causes and review your medical history with you.
Theyll confirm that you at least have the core symptoms previously mentioned. Theyll also ask about the duration and severity of your unexplained fatigue.
Ruling out other potential causes of your fatigue is a key part of the diagnosis process. Some conditions with symptoms that resemble those of CFS include:
- sleep disorders
The side effects of certain drugs, such as antihistamines and alcohol, can mimic symptoms of CFS as well.
Because of the similarities between symptoms of CFS and many other conditions, its important to not self-diagnose. Talk to your doctor about your symptoms. They can work with you to get relief.
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